Advocacy in Action
Your Voice, Your Power
💡 We’re done waiting for change—it’s time to demand it. Brain aneurysms are underfunded, overlooked, and ignored in critical legislation. But TOGETHER, we can change that.
🚨 Here’s what we’re fighting for:
✔ Official recognition of Brain Aneurysm Awareness Month in Missouri & beyond
✔ Increased government funding through Ellie’s Law for research & support
✔ A seat at the table—because our voices deserve to be heard
📢 Ready to make an impact? We’ve made it EASY for you. Just fill out the form below, and we’ll handle the rest. No need to search for your representative—our system will do it for you.
🛑 Your voice. YOUR POWER. Let’s get to work.
CONTACT POLICYMAKERS
Advocate for Change
Every year, thousands are affected by brain aneurysms. With increased funding for research, we can achieve earlier detection, better treatments, and ultimately save lives.
Now is the time to take action!
Reach out to your policymakers today to highlight the urgent need for brain aneurysm research funding. Together, we can make a life-saving difference.
Contact your legislator to sign onto Ellie's Law
Support Brain Aneurysm Research!
Ellie’s Law (H.R. 902 & S. 895) aims to establish the first-ever dedicated funding stream for critical brain aneurysm research. This funding will drive breakthroughs in prevention, improve outcomes for survivors, and enhance their quality of life.
Brain aneurysms are among the most underfunded disease research projects in the U.S. regarding the number of Americans impacted and the tremendous loss of life, the decrease in the quality of life for survivors, and the long-term medical costs for families affected.
“Ellie’s Law” is a bipartisan bill introduced by Reps. Yvette Clarke (D-NY) and Brian Fitzpatrick (R-PA) (H.R. 902) and Sen. Richard Blumenthal (D-CT), and Sen. Markwayne Mullins (R-OK) (S.895) and was drafted in consultation with members of the brain aneurysm medical and research communities.
Ellie’s Law would provide the first ongoing dedicated research funding stream for breakthroughs in preventing potentially fatal brain aneurysms from rupturing and improving the long-term medical consequences and quality of life issues for aneurysm survivors.
Ellie’s Law honors five women who passed away as a result of a brain aneurysm: 14-year-old Ellie Helton; WABC Eyewitness News reporter Lisa Colagrossi; Kristen Shafer Englert, 24 who died shortly after the birth of her first child; Teresa Anne Lawrence, devoted mother of three; and 27-year-old Jennifer Sedney who passed away on Christmas Day in 2013.
Is your legislator a co-sponsor of Ellie’s Law? Find out by clicking the links below and join the movement for change!
